22/07/2023
Dear Friends,
I battled for a long time wondering if I should share this journey with you in such a public space. It came down to the responsibility I feel to share my story for other women who need help.
For 10yrs I’ve struggled with insurmountable fatigue, pain & nausea. Trying to remain a positive person & hide the pain has been a very long road. These last 10yrs have included many tests, doctors visits, scans, etc. A doctor told me it was simply something you deal with as a woman & I gave up entirely, trying to function through the pain. I didn’t find answers until a friend Leslie Mosier helped set me on a path of regaining my life. I decided to undergo surgery for endometriosis. Going in for surgery was scary but I knew I couldn’t live like I was. Every part of my life was getting torn apart because of the pain. To cut a long story short, they found 37 lesions, some very deep & difficult to remove, & a chocolate cyst. Seckin’s first words to me when I was in recovery were, “How did you live with this much pain?” Validation for years of pain is indescribable. My family & friends who have been on this journey with me for 10+ yrs - THANK YOU, for encouraging me to find answers when I thought I’d never climb out. Thank you to the doctors & nurses who believed my pain. I’m on the road to recovery & the gratitude I feel is overwhelming. To those questioning the cancelled plans, unanswered messages & absence - I had been pouring every ounce of the energy I had left into our daughter & family.
Things may look fine on the outside looking in through the window of someone’s life, however, that is not always the case. Please be gentle & pause before asking me (or any woman) when we’ll be having more children. After all that my body has gone through, I feel tremendously grateful that we have our gorgeous daughter. She feels like our family’s miracle.
I’m aware of millions of women struggling with a similar story. There’s stigma around this awful disease. I’m sharing my story for anyone who reads this & is quietly dealing with pain & no answers. Let this be your validation that your pain is real & you deserve help. Keep searching for answers. www.endofound.org