This is Paige’s brain tumor journey - told with her favorite singer’s theme, Taylor Swift, whose music helped her through the last few months in CHOP hospital.
I promised Paige I would create this video and put it out there with her special request at the end of the video, before we choose which #taylorswift concert to buy tickets to again. We promise to take her to a #tsconcert before the #erastour is over. If anyone knows the right person to help make Paige’s dream of a #22hat come true, please share this video with them or tag them. We aren’t the type of family to ask for things much, so I feel weird putting an ask out there - but I’ll do anything for our little warrior.
Side note: Her tumor type has a FGFR mutation. The first pediatric pre-clinical trial to find an inhibitor for this mutation type has been approved at Boston Children’s Hospital. Research will start once funding is in place. If anyone wants to donate a dollar to help us get this brain tumor research started, here’s the link: http://fundraise.childrenshospital.org/goto/PaigeFGFR
#taylornation #braintumor #braincancer #braintumorawareness #bravegirl #lovestory #soonyoullgetbetter #lover #red #swiftie #theerastour #theerastourtaylorswift #swifties #ttpd #fearless #speaknow #1989 #reputation #folklore #evermore #midnights #22
This is Paige’s brain tumor journey - told with her favorite singer’s theme, Taylor Swift, whose music helped her through the last few months in CHOP hospital.
I promised Paige I would create this video and put it out there with her special request at the end of the video, before we choose which #taylorswift concert to buy tickets to again. We promise to take her to a #tsconcert before the #erastour is over. If anyone knows the right person to help make Paige’s dream of a #22hat come true, please share this video with them or tag them. We aren’t the type of family to ask for things much, so I feel weird putting an ask out there - but I’ll do anything for our little warrior.
Side note: Her tumor type has a FGFR mutation. The first pediatric pre-clinical trial to find an inhibitor for this mutation type has been approved at Boston Children’s Hospital. Research will start once funding is in place. If anyone wants to donate a dollar to help us get this brain tumor research started, here’s the link: http://fundraise.childrenshospital.org/goto/PaigeFGFR
#taylornation #braintumor #braincancer #braintumorawareness #bravegirl #lovestory #soonyoullgetbetter #lover #red #swiftie #theerastour #theerastourtaylorswift #swifties #ttpd #fearless #speaknow #1989 #reputation #folklore #evermore #midnights #22
Flipping over Wednesday night Sailboat racing!