Photos, Events & Stories of Bendigo, Victoria, Australia
25/01/2025
Kilometres for KIF1A : 28 Kilometre Challenge for a KIF1A Cure
*Challenge runs February 1 - February 28, 2025.
$28.00 for 28 Days - All funds raised goes directly to Murdoch Children’s Research Institute, Dr Simran Kaur’s research team for KIF1A.
Will you join us for Kilometres for KIF1A? We are challenging each other to complete 28 Kilometres or MORE in the month of February by February 28, 2025, Rare Disease Day!
KIF1A Associated Neurological Disorder (KAND) is a very RARE Disorder and prevents some of our children from ever being able to move, and those who do have some mobility face the possibility of losing this over time. It’s just one of many of the devastating symptoms those with KAND face and because of this…It is Neurodegenerative and similar to all top 5 Neurodegenerative conditions such as Alzheimer’s, MND, ALS, etc. And too many die young, before they turn five years old.
WE DON’T TAKE A SINGLE STEP FOR GRANTED.
As parents and caregivers, it’s also crucial for us to stay strong, and we’re on a mission to honour our KAND warriors this Rare Disease Month by raising awareness and support for KIF1A research aimed at finding effective treatments and a hopefully on day a cure.
You can cover these Kilometres however you choose throughout the month of February. Whether it's walking, running, swimming, or cycling, it’s all about moving forward when and how you feel most comfortable. Every Kilometre counts, and we hope we can inspire everyone to participate!
Together, we can go further and make a difference in the fight against KAND. Each step brings us closer to a cure, and we hope you'll join us in this important 28-Kilometre challenge!
When you complete 28 Kilometres or more AND submit your results via Edward’s Journey Social Media IG and FB, you will be able to see who moved the most in the month of February.
Can't join the challenge, but still want to help? Your donations and support for our MCRI-KIF1A research is greatly appreciated. Click DONATE above for more information to help us reach our goal!
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