The Adventures of Theo

The Adventures of Theo Awareness of Ohtahara syndrome and fundraising.

29/11/2024

Please follow the adventures of Theo group for updates πŸ₯°. We had to change to a group as the page wasn't reaching people thanks guys πŸ₯°

22/11/2024

Forever grateful for your support x

Wow!!!! Thank you so much we are sold out 😱πŸ₯°πŸŽ‰
28/08/2024

Wow!!!! Thank you so much we are sold out 😱πŸ₯°πŸŽ‰

One last push to get this house finished!!! We REALLY NEED your support at our next fundraiser …. Tickets are on sale no...
22/08/2024

One last push to get this house finished!!! We REALLY NEED your support at our next fundraiser …. Tickets are on sale now

🌺 Happy Mothers Day to my Mummy  🌺Thank you for never leaving my side even when you’re exhausted. Thank you for always b...
10/03/2024

🌺 Happy Mothers Day to my Mummy 🌺

Thank you for never leaving my side even when you’re exhausted.
Thank you for always being my voice and shouting loud for me so I get what I need.
Thank you for being my ambulance when I need to get hospital quickly and my nurse when I’m feeling poorly at home.
Thank you for making me feel safe when I’m scared.
Thank you for always cuddling me even when my Auntie Tash tells you Nanna B would be saying you’re spoiling me.
But most of all thank you for being the BEST Mummy in the world!!

πŸ’œI love you with all my ROARs and more πŸ’œ
πŸ¦– Your little boy TheoπŸ¦–

As they say it takes a village to raise a child…. And they certainly got that right with Theo!!
So a shout out to Theo’s Nanna who is also there to support Kayleigh and Theo every step of the way!! From hospital runs to sitting with Theo so mummy can nip to the shop!! We all love you Shazza! You’re our rock! 😘

2023 what a year you have been. I think overall this year has been your best one yet Mr Theo, spending less time in hosp...
31/12/2023

2023 what a year you have been. I think overall this year has been your best one yet Mr Theo, spending less time in hospital..... I think πŸ€”.......but we have had fun making memories along the way. Here's to 2024, it's going to be a good one baby boy, hopefully starting with getting the house sorted and then lots of fun in the sun with family and friends. I can't believe you are also.going to be 5!!! How did that happen 😱. Thank you again for every single one of you that has been there for us this year and supported us in one way or another, see you all in 2024, when our roar will be even louder πŸ’™πŸ¦–

29/10/2023

Don't forget to get your tickets for this amazing sweet bouquet from Just because πŸ’™

Look at these amazing prints! The AMAZING, Chris is selling these in aid of Theo, how good are they πŸ˜πŸ’™πŸ¦–! Please click th...
18/07/2023

Look at these amazing prints! The AMAZING, Chris is selling these in aid of Theo, how good are they πŸ˜πŸ’™πŸ¦–! Please click the link to purchase yours, these are a limited edition and there are only 150 available, once they have gone they have gone, don't miss out!
All profits go directly to making Theos house a home πŸ’™πŸ¦–

Find many great new & used options and get the best deals for 'Red and White Tide' by CJW at the best online prices at eBay! Free delivery for many products.

So after 9 weeks bouncing in and out of hospital, we finally have a happy boy back!Please please please Theo can we stay...
29/06/2023

So after 9 weeks bouncing in and out of hospital, we finally have a happy boy back!
Please please please Theo can we stay at home this summer!

We have a fundraiser on the 15th July, please see below and we desperately need raffle prizes, if you have anything you would be able to donate, it would be greatly appreciated πŸ’™!
All funds raised goes towards getting the house finished for Theo πŸ’™πŸ¦–

Theo is currently in QMC after being transferred from Lincoln by blue lightsπŸš‘πŸš‘ on Friday so that his team of Doctors can...
05/06/2023

Theo is currently in QMC after being transferred from Lincoln by blue lightsπŸš‘πŸš‘ on Friday so that his team of Doctors can work out what’s going on.

Since being admitted Theo has undergone lots of observations and tests to see why he is constantly asleep and not his happy self. Today we are starting to get nearer to some answers but as always it’s not a straight forward answer or plan of action and will mean Kayleigh and Theo will be in hospital for a little while yet.

This page was set up not only to help us raise funds to make Kayleigh and Theo’s home more accessible but because Kayleigh feels incredibly strongly about sharing their story and helping others understand what life is like for families with children who are medically complex. Long term she wants to create a charity which will give others the support they need as believe it or not there is no support system or charity set up to support families of children with Ohtahara syndrome.

πŸ’œπŸ’œThis will be our last post on here as we are moving over to the group page as it is enables us to reach more people. As only 200 have joined the group from the 1000 followers on here can we ask you to please make sure you go to the group page and join it πŸ’œπŸ’œ

I will add the group link in the comments πŸ’œπŸ¦–πŸ’œ

So today we should have been going to Rainbows for the week, but instead Theo decided to come to Rainforest ward at hosp...
29/05/2023

So today we should have been going to Rainbows for the week, but instead Theo decided to come to Rainforest ward at hospital yesterday instead πŸ™ˆ, close Theo πŸ™ˆ! I suppose at least it's not HDU this time, small wins and all that!

Well this made me cry! But this has to be my new favourite poem, I love it! You are so brave and strong my little T-Rex,...
28/05/2023

Well this made me cry! But this has to be my new favourite poem, I love it! You are so brave and strong my little T-Rex, we got this! πŸ’™πŸ¦–

Raffle tickets available!!!! Comment below if you would like one x
26/05/2023

Raffle tickets available!!!! Comment below if you would like one x

25/05/2023

Just look at him!!! Enjoying some sensory play time with Mummy πŸ’œ
Theo loves lights and all things sparkly… what makes you smile??

FYI πŸ¦– Tomorrow night we are holding a fundraiser to help us raise funds to complete the house and turn it into a home where we can provide more of this type of activities for Theo.

For more details on the event please click this link ..

https://facebook.com/events/s/professional-make-up-mastercla/1202011660512985/

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Lincoln
Lincoln
LN60RS

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