Chiari Connection International

Chiari Connection International Chiari Connection International (CCI) is a website and Yahoo Health Group resource for people with Chiari and related disorders.

11/22/2024
11/21/2024

Love the idea, of where this is leading! Independence, finally in sight!

11/12/2024

Although science tells us that half our genes come from Mom and half from Dad, a new study has discovered that the tiny power plants, called mitochondria, in our cells only contain DNA from our mothers.

11/11/2024
this can save family with special needs so much stress, worry and aggravation.
11/07/2024

this can save family with special needs so much stress, worry and aggravation.

Looking to apply for a TSA PreCheck online? Travel faster with the application, enrollment, renewal, Traveler Number, cost, carry-on rules & appointment.

10/25/2024

If I have one more MD tell me I was born that way and there is nothing they can do about it, I'm going to start taking names for my book! I was born with Chiari malformation, hydrocephalus, cervical and thoracic instability and tether cord; all of which are rare diseases that have been stabilized. How the hell can you not take out styloids with the ligaments that are calcified? From my understanding, this is the easiest surgery in Rare Disease!

I have a feeling this is gonna be an entire chapter in my book !

10/23/2024

Menopause and Low Estrogen!

So needed....
10/14/2024

So needed....

🎉 Speaker Spotlight: Emily Cochrane! 🎉⁠

We’re excited to introduce Emily Cochrane, a Clinical Exercise Physiologist with a specialist focus on managing chronic conditions like EDS and POTS.

Emily has a wealth of experience helping individuals navigate the challenges of persistent pain and fatigue. She holds a degree in Exercise and Sport Science and a Master of Clinical Exercise Physiology from Deakin University in Australia. Her clinical practice is deeply informed by her personal experience with POTS, ME/CFS, endometriosis, adenomyosis, and neurodivergence.⁠

Since moving to the UK, Emily has founded her own physiology clinic and works virtually to train practitioners across the UK and Ireland, helping them upskill in areas like POTS and EDS. She’s also actively engaged in research, pursuing her doctoral studies in POTS and fatigue. ⁠

💡 Presentation Highlight:
Emily will explore the physical and mental energy costs of everyday diet-related tasks like shopping, preparing meals, and eating. She’ll share energy management strategies that can help reduce fatigue.

Don’t miss Emily’s invaluable insights at the virtual EDS ECHO Summit: Diet and Nutrition on November 2, 2024! 💻✨⁠

Register now 👉 https://www.ehlers-danlos.com/events/eds-echo-summit-diet-and-nutrition/

Registered Clinical Nutritionist/Nutritional Therapy & Lifestyle Medicine Practitioner, Lorna Ryan is the Lead Facilitator and Co-planner. Lorna is chair of The International Consortium on Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders, Diet & Nutrition working group, focusing on delivering expert consensus and resources for patients and clinicians.

10/02/2024

So many fusion patients get this... I still do...

Address

New York, NY
10016

Opening Hours

Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm
Saturday 9am - 5pm
Sunday 9am - 5pm

Telephone

+19175549500

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